Update on a Aspie kid

It has been a while since we got a diagnosis on L. He is handling Speech therapy without too much fuss and he made it through his EEG and I wait until February.

Here is him hanging at the Neurologist.


Fortunately he was on a long enough leash that he could move throughout the room, watch tv, play video games, ect.

I started a FB page to keep track of what I am learning because sometimes blogging is so much work.

Today the focus is on scheduling. Auspie kids need a schedule that is not deviated upon unless the child has been informed a head of time. Lachy's Schedule is simple since he is really the social age of 3 rather than 5. No wonder he and Ben are best friends. I don't even come close to having it all together--I am still trying to understand the disorder. It is said that if you meet one Apsie child you have met ONE aspie child. There is not much consistency and although there are basics that are across the board, each child has to be treated differently. The trick is finding out what works and that is what I am doing. I am inundated with information and won't feel I have it under control ever.

I just found this book to download and now I am about to read it. Thoughts will follow I am sure but right now I have to pick E and T up from Saturday school. So I will return to delve deeper inot the aspects of this disorder. Note that te DSMV4 is no longer in effect and THE DSMV5 diagnosis requirements have changed. I will add that to when I get back.....


https://s3.amazonaws.com/autismsparks/Resources/AS-ebook.pdf

Reality is setting in: THERAPY of all sorts

It has been a busy week for L. He has gotten teeth cleaned, seen two members of his medical team that is being assembled, started speech therapy ....

Yesterday's appointment
12 hour EEG sheduled.
http://www.hopkinsmedicine.org/healthlibrary/test_procedures/neurological/electroencephalogram_eeg_92,P07655/
This will be done in their Orlando office on a Saturday 6 am to 6 pm. Medication will be administered prior and during.
Here

Florida Hospital
https://www.floridahospital.com/

is on the referall and I am still looking through the system to find the one that has Occ. T. If it is Orlando, I may start screaming and never stop. I am filling out Linx reduced fare applications today while T does his vacation work. Anyway, this will make it easier to get to appointments. This may work out a lot less money than trying tokeep a car registered and insured. Ugh, the budget haunts. Alas, yet again I forget what I am writing about.

I was not fazed when I first found out since I knew L was "off" but now that I am researching through a certain dicorder and way of thinking--and the number of supports that must be in place, I am definitely fazed. Blindstruck is more like it. I am having to change a whole lot and I am sure everyone will benefit because I have no choice but to organize now that I know fully what his issues are and accept that his thinking difers. I scanned books on my Kindle last night to begin a library. Sometimes one wants more depth than can be found in a web page or two.

Putting Kindle down since I am looking up books that have NOTHING to do with and Auspie child.


Aspergers can manifest in different ways. They can be high functioning, with mild sysmptoms tp severly hanicapped by the syndrome. Some activities we are trying witht he sensory issue are allowing L to play with a pile of shaving cream, ooblick (cornstarch and water), dried rice with implements to pour. Always lots of bath toys to explore water too.

Sensory for L also spills into his clothing so now I will buy two of what he really likes so he can rotate. Especiallly sneakers. He refuses tot throw the ones that are disgusting out for a pair he has had for 3 months.


http://www.autismspeaks.org/docs/family_services_docs/AS-HFA_Tool_Kit.pdf

This download is 62 pages but includes charts to keep track of contacts therapists, appointments and phone numbers as well as a plethora of information on resouces and Asperger's itself. I've just finished prinint it and am off to three hole punch and place in a binder. Tjen I am going to fill in all the Dr's he has seen. So much has happened so darn fast with his care. I am gratefully that after so many years of knowing there was a problem, I have been able to get him care in place fairly rapidly by FL standards--no downright lightening-like by FL standards. Just another way to organize and by me being organized, it makes it easier for me to help everyone else living here become more in control of their environment for misplacing things is our trade mark.

TAKING TURNS: Difficult for an Aspergers child. We play games where he has to wait for everyone to have a turn. Start off with mom and L then we added kids to make it more challenging for him to wait. He also has to wait his turn for computer time and has it limited.

I think structure is what it boils down to. Get time for computer activities if you get checks on chore charts, (must make new ones today: chores haven't been working out as well as I hoped).


HOMESCHOOL ASIDE:
I found this site with downloadable lesson plans. I am going to use the preschool ones for B and L so they have "work" to do.
http://classroom.kidshealth.org/