100 days down through the Autism speaks book...Or Space boy thinks crayons should be naked

I was feeling awesome yesterday morning as I got up with Is and discussed taking her to school to report someone texting her and threatening to beat her up. I was proud to see that she just needs a shadow of support for she marched right into the principles office and said "I need to speak to you." Ummm okay, Is. Apparently (the principle) she likes my daughter. The girl was out yesterday so there should be mediation or whatever today. Triumph. Before leaving:



Now for the Space boy. Speech is at 9:30 and he likes to sleep until nine. Note he was wearing the shorts in the picture above (the top, I have gotten rid of." So this is the clothing I thought to offer him:



He picks with NO PROBLEM!!!!!!!! I did shorts or long pants. Then which shorts--knowing now that he leans toward plaid and accepting it makes it so much easier.. Long sleeve or short sleeve. He dressed without issue. We filled the Burley and I biked them to school, making it back just as mum and dad arrived. I am sure they want to make sure I am taking care of their home. ML was with them and is down for a vacation. This will be their winter home if I ever leave...... Mum seemed happy even if the floors needed sanitizing. I only spot mopped.

What did we do: I recovered both computers to factory condition and am actually using the kids computer now. We made brownies and snicker doodles. The boys were placed at the table with a bunch of coloring books and crayons. As pictured they chose to color with a highlighter and pen.



This is what naked crayons look like. Rather than color with them, SB peeled the crayons, Then latter, rather than color, he took them to the garage and broke them into little pieces.



The moral of this post: Just when you think you have it--know you don't. Space boy does because the sensory experience of peeling and breaking was pleasurable to him and soothing. It just drives me nuts.

Another morning of Asperger's

I found this on a FB page: https://www.facebook.com/AspergerSyndromeAwareness

I have to keep remembering, my son doesn't think like other boys. He is almost in a world all his own. I almost want to thank those who were trying to convince me nothing was wrong because it is blissful at times being unaware. But we beat on, boats against the current, being swept ceaselessly into the past ...Gasby.

I am beating on while I look at a list primarily of Lachy appointment making or changing. I am working out the best caregivers with the distace and time waiting scale. Who will win? This race I propose in a state that believes life should be taken leisurally. I disagree. There is little time and much to do. I wish there were more hours during the day. I wish I could just "think" what needs to be in place and have it magically fall there!

-His next Behavioral Therapy is at noon in Orlando. So Friday 9:00 speech therapy, 12:00 Behavioral Therapy and 3:00 Terminix.
--Busy day and it will help me stay focused except when my mind wanders to things past. I need to learn to leave the things I do not trust in my past. The problem is I will always keep that smidgen of trust and a heap load of hope.

Reality is setting in: THERAPY of all sorts

It has been a busy week for L. He has gotten teeth cleaned, seen two members of his medical team that is being assembled, started speech therapy ....

Yesterday's appointment
12 hour EEG sheduled.
http://www.hopkinsmedicine.org/healthlibrary/test_procedures/neurological/electroencephalogram_eeg_92,P07655/
This will be done in their Orlando office on a Saturday 6 am to 6 pm. Medication will be administered prior and during.
Here

Florida Hospital
https://www.floridahospital.com/

is on the referall and I am still looking through the system to find the one that has Occ. T. If it is Orlando, I may start screaming and never stop. I am filling out Linx reduced fare applications today while T does his vacation work. Anyway, this will make it easier to get to appointments. This may work out a lot less money than trying tokeep a car registered and insured. Ugh, the budget haunts. Alas, yet again I forget what I am writing about.

I was not fazed when I first found out since I knew L was "off" but now that I am researching through a certain dicorder and way of thinking--and the number of supports that must be in place, I am definitely fazed. Blindstruck is more like it. I am having to change a whole lot and I am sure everyone will benefit because I have no choice but to organize now that I know fully what his issues are and accept that his thinking difers. I scanned books on my Kindle last night to begin a library. Sometimes one wants more depth than can be found in a web page or two.

Putting Kindle down since I am looking up books that have NOTHING to do with and Auspie child.


Aspergers can manifest in different ways. They can be high functioning, with mild sysmptoms tp severly hanicapped by the syndrome. Some activities we are trying witht he sensory issue are allowing L to play with a pile of shaving cream, ooblick (cornstarch and water), dried rice with implements to pour. Always lots of bath toys to explore water too.

Sensory for L also spills into his clothing so now I will buy two of what he really likes so he can rotate. Especiallly sneakers. He refuses tot throw the ones that are disgusting out for a pair he has had for 3 months.


http://www.autismspeaks.org/docs/family_services_docs/AS-HFA_Tool_Kit.pdf

This download is 62 pages but includes charts to keep track of contacts therapists, appointments and phone numbers as well as a plethora of information on resouces and Asperger's itself. I've just finished prinint it and am off to three hole punch and place in a binder. Tjen I am going to fill in all the Dr's he has seen. So much has happened so darn fast with his care. I am gratefully that after so many years of knowing there was a problem, I have been able to get him care in place fairly rapidly by FL standards--no downright lightening-like by FL standards. Just another way to organize and by me being organized, it makes it easier for me to help everyone else living here become more in control of their environment for misplacing things is our trade mark.

TAKING TURNS: Difficult for an Aspergers child. We play games where he has to wait for everyone to have a turn. Start off with mom and L then we added kids to make it more challenging for him to wait. He also has to wait his turn for computer time and has it limited.

I think structure is what it boils down to. Get time for computer activities if you get checks on chore charts, (must make new ones today: chores haven't been working out as well as I hoped).


HOMESCHOOL ASIDE:
I found this site with downloadable lesson plans. I am going to use the preschool ones for B and L so they have "work" to do.
http://classroom.kidshealth.org/